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FAMILY AND LOVED ONES

FAMILY AND LOVED ONES

Given their young age, family, loved ones and other community workers involved with them are considered allies in treatment. The treatment team therefore meets with them and the young person (if the young person agrees, which is strongly encouraged) as early as possible once treatment begins. A psychoeducational approach for family groups complements the psychoeducation and support offered to families. For families who need family therapy, a specialized therapist will offer a series of sessions to improve problem-solving, communication, and so on. Interventions take into account the delicate balance between, on the one hand, the family/community support necessary for the young person's recovery, and, on the other hand, the importance of encouraging separation/individuation and the development of their autonomy. The philosophy at the heart of treatment is to see this young adult or adolescent as someone with life plans and potential who must adapt to an illness they need to learn to better "master," rather than as a "vulnerable sick young person" who must be shielded from life's stresses. This view allows the young person to cultivate hope and reach their full potential while taking their limitations into account.

CMHA - For loved ones (parents)

CMHA - For loved ones (siblings)

CLINIQUE JAP PSYCHOEDUCATION GROUPS FOR LOVED ONES OF PEOPLE WITH PSYCHOSIS

These psychoeducation groups, exclusively for loved ones, aim to provide information about the illness, its treatment, and how loved ones can help the person who is ill. Studies show that when loved ones take part in this form of intervention, the number of relapses of the illness is reduced.

Welcome meetings at Clinique JAP

Has your loved one just been admitted to Clinique JAP? Have you never attended a welcome group? We want to meet you! This meeting will help you better understand psychosis, treatments, the care offered, and the recovery process. You will also have the chance to hear a young patient speak about their lived experience.

*If you have to miss work or school, we can provide a note confirming a medical appointment, as this meeting is an integral part of the treatment offered at Clinique JAP

You can register using this form. 

 

Evening meetings for loved ones

These evenings, led by a family peer supporter and a clinician from Clinique JAP, take place on the second Tuesday of every month. All loved ones are welcome. Different topics are covered (medication, relapse prevention, communication, taking care of yourself as a loved one, etc.). You can check the newsletter for this month's theme.

It is also a chance to come and ask questions about psychosis, follow-up at Clinique JAP, the stages of recovery, and so on, in a non-judgmental setting, with other people who have had a similar experience.

Register here: this form.  

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HOW TO HELP YOUR LOVED ONE?

Parents also play a key role as first-hand observers. Parents and loved ones are in the best position to quickly notice changes in behaviour and attitude and report them to the treatment team. The young person may express what they feel in language typical of their age group. They may use expressions such as feeling "fucked up," "full bizz," or say they feel "confused," "mixed up," or "paranoid." In addition, parents are often the first to contact early intervention teams to get information and/or refer their young person. Since the young person generally trusts them, they are in the best position to help them get in touch.

During the most difficult stages, parents and siblings also have a role of support and encouragement. However, it is important to keep in mind that young people may need respite and distance, and do not necessarily want people around them at all times. If the young person lives alone or with roommates, parents can offer them the chance to come back home for a few weeks or months. Care should then be taken with the new family dynamic, because the intensity of the emotions expressed can be much greater than usual and create tensions that can hinder recovery or even help precipitate relapses.

LEARN MORE

How can I help? (EPPIC)

Société québécoise de la schizophrénie

 

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Siblings

During a psychotic episode or during remission, at home, siblings may be very worried about their brother or sister's condition and afraid of losing them, of losing this special relationship they have. In addition, a bit like the birth of a new child, siblings may fear losing their parents' attention, as the young person who is ill takes up a great deal of the parents' time and energy.

In the same way, the young adult's friends may react to psychosis in several ways. Some will pull away for a time, not knowing how to react or what to do, because it hurts them too much or because of the prejudices of other friends in the group.

You can refer to the Siblings' Guide to Psychosis for more ideas and resources.

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RECOGNIZING PSYCHOSIS

Are you worried about your loved one's behaviour?

Because it is important to treat psychosis as early as possible, we should try to detect it as early as we can, during the phase before frank psychosis (the prodrome), or even earlier, when the signs and symptoms are subtle and may go unnoticed or be mistaken for typical teenage turmoil or a "rough patch." If your loved one's behaviour seems strange to you, to the point where you no longer recognize them, you should consider the first signs of psychosis. If this has been going on for some time, confirm your impression with the people who spend time with them. If you try to share your observations with them and they show no openness, an assessment by a physician may be necessary. Young people should be put in touch with a doctor if you notice several of these signs:

  • Hears voices or sees things that others cannot see or hear;
  • Acts strangely; other young people find them strange;
  • Has bizarre ideas or false beliefs (that they are being followed or watched, that they are the Messiah, etc.);
  • Has trouble concentrating on watching TV, a movie or reading a book;
  • Is distrustful, paranoid, or suspicious;
  • Speech that is hard to understand, illogical or does not make sense;
  • Eats less, loses weight;
  • Has trouble sleeping, is restless;
  • Withdraws from friends and becomes increasingly isolated;
  • Has mood swings or is very irritable or anxious.

You can also use the SQS's Refer-o-Scope online tool to screen for signs suggestive of psychosis.

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Talking with a young person

It can sometimes be difficult to talk with someone who has psychosis. While there is no magic formula, a few general tips can make it easier:

  • Be yourself,
  • Get informed and understand that the person behaves and speaks differently because of psychotic symptoms,
  • Keep in mind that psychotic symptoms are painful for everyone and that it is normal to feel a whole range of emotions: shock, fear, sadness, frustration, anger, despair,
  • Talking with other people will help you manage these emotions. Keep confidence in the person's recovery. Even if it takes time, be patient,
  • When a person is experiencing psychosis, their needs may vary. At times they may need more supervision (e.g., if their judgment is impaired), and at other times they may need more autonomy, but with support in decision-making.
  • Try not to "take it personally" when the person says hurtful things while they are in crisis,
  • Stay as calm as possible and avoid an authoritarian tone,
  • Remove sources of distraction (radio, television, etc.).
  • Give them space. Understand that an overly emotional response on your part may heighten the distress your loved one is in,
  • Have only one person speak at a time,
  • Share what you notice about their behaviour (e.g., you are afraid, you are confused, etc.).
  • Ask them whether anything is worrying them.
  • If needed, repeat your questions using the same wording.
  • Check whether they are ready to see a doctor and offer to go with them.

Source: CAP santé mentale | Mental health | Network of organizations that help loved ones

HELPING YOURSELF AS A PARENT

In typical development, every parent has to grieve the ideal child and the illusions placed in them. When psychosis emerges, that grief is intensified. The parent may wonder about the "normal future," meaning that the child may never be the same again, which can be a source of anxiety. In addition, the usual path is often slowed and changed: higher education, career, leaving the family home. As a couple, freedom and intimacy may be disrupted, and retirement plans may be changed or delayed. They sometimes have to let go of certain secretly held dreams. Another source of worry is that their children may not be available later to support them as they age.

At that point, parents ask themselves: what will become of their child? Will they be able to manage when the parents are no longer there? Some parents may feel guilty, as if they have genetically "transmitted" the illness or failed to prevent it. It can also be normal to feel shame, denial, or even a refusal to acknowledge the young adult's illness, to question the treatment team, and even to undermine the treatment plan, which is obviously not desirable. Sometimes parents try to attribute the psychosis to substance abuse alone.

Other parents may continue to place excessive demands on the young adult, refusing to revise their expectations and accept the limitations caused by psychosis. It is also advisable to let the young person choose their own path and new life plan, if that is the case. Overprotection, particularly trying to control medication, the diagnosis, or finances, is a behaviour that can be normal.

LEARN MORE

Family peer support helpline | Arborescence

Resource directories by administrative region of Quebec:

AMI-QC support groups (in English)
Information for families (AMI-QC)
List of resources and tools developed for the general population (MSMQ)

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Are you the parent or friend of someone living with
mental health problems?
ARBORESCENCE is here for you.

It can be very stressful to see that a loved one is living with psychosis. You may feel shocked, confused, frustrated, or guilty. There is no right or wrong way to feel.

You too may need help, and it can once again be hard to admit and accept. Even so, it is sometimes necessary to face the fact that caring for someone with psychosis can be a challenge, especially if that person refuses to admit they have a problem or does not want to cooperate (taking their medication, etc.).

Help for loved ones (family and friends) can also take the form of mental health training and education. Support groups are offered in several places (see the links above). You can also ask members of the treatment team to refer you to the most appropriate resources.

LEARN MORE

Arborescence Québec

A MOTHER'S TESTIMONIAL

"There is still a great deal of prejudice toward people with mental health problems, to the effect that they are violent people.

I now know that is not true. We should not take the media at their word and generalize. People who have had a psychotic episode are more often a danger to themselves than to others."

LEARN MORE

Read the full testimonial (PDF)

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